WAG Perthes Disease Diagnosis.....

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cadybearsmommy

Proud Parent
I’m sure some of you remember me posting in January about my dd’s (12 years old training L7) hip trouble. She was sent for an MRI which showed nothing but fluid and since she was already doing better orthopedist diagnosed transient synovitis. Followed up in a month, she was doing great and was released.

All was good, the rest of comp season was good. In April she started having some pain and stiffness with stretching and started limping again. She felt some better but when the stiffness was still there in June we decided to visit a PT. Since her scans showed nothing significant in Jan, we though probably just some inflammation/ stiffness. The PT worked with her for a few sessions but became concerned that her range of motion showed little improvement and that one leg appeared to be longer than the other (upon measurement they were the same but one appeared longer bc hip bone was up higher.). She sent us to get another X-ray bc she was concerned about a possible SCFE (slipped epiphysis). X ray led to yet another MRI and I was honestly convinced they were blowing the whole thing out of proportion. However when following up with the orthopedist today, we found out that the MRI showed she has late onset Perthes Disease. Basically her femoral head has had a compromised blood supply and is degenerating. He is referring her to a pediatric orthopedic surgeon at the hospital. He has ordered her out of the gym until we find out what the specialist wants to do. She lost it at the doctors office, I think she is willing to endure almost any length of recovery time but she’s devastated at the idea of being put out of the sport altogether. My heart is breaking for her, she loves this sport and honestly does it for the pure joy of it. She has never expected to go on to college gymnastics or sweep the podium but she the gym has been her happy place since she was four years old. She just wanted to do it as long as she could. She identifies as a gymnast, all her friends are gymnasts etc. I know that life goes on after gymnastics and all but it’s hard to see that right now.
I guess I’m just looking for a place to vent and of course if anyone has any experience with this condition please feel free to share.
 
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I have no experience but I wanted to say that I am so sorry she is dealing with this, and the rest of your family as well. What we all want if for our kids to come to the end of their gymnastics journey on their own terms. So many hugs.
 
Gosh, I’m so sorry to hear that - what a horrible blow for,her. I will hold out hope that there is something that can be done for her and that she can stay in the sport somehow, even if things have to be modified. I’m glad the PT pushed for the MRI and the real issue was found.
 
I'm so sorry. My DD's BFF had something similar and unfortunately did recently get the news that she is out of gymnastics for good. She had surgery last year and had hoped to come back this season; but her doctor said that her hip just can't do the impact. I hope that you guys caught it early enough that you have a more positive outcome. I will say that for this little girl she continued doing gymnastics for several years after diagnosis and it wasn't until the surgery that she had to take time off. Before that she dealt with the symptoms and rested as needed.
 
Oh my goodness! I just read your post today... I am so sorry and so sad for your daughter! Sending hugs and hoping for some kind of good news. Please keep us posted after your visit to the specialist.
 
I am so sorry to hear this. I have no personal experience with this, but do know of an acquaintance of an acquaintance type situation where a 12 year old dancer had the same diagnosis. She ended up going to Portugal for a surgical procedure by a specialist there, as the procedure is not yet approved in the US. She has a Facebook page regarding her journey, that is public if you would be interested I could PM you. I’m not sure if you want to follow it though, especially at this point, as it’s definitely tough seeing what she has gone through.
 
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I am so sorry. I know how devastating that must be! My dd has recently had a flair/progression in her juvenile arthritis and while she is training some bars/beam right now, we know there is a possibility she will have to quit. There have been lots of tears- hers and mine!
 
I am so sorry. I know how devastating that must be! My dd has recently had a flair/progression in her juvenile arthritis and while she is training some bars/beam right now, we know there is a possibility she will have to quit. There have been lots of tears- hers and mine!
Ugh. Dislike. I hate to hear this!
 
I am so sorry. I know how devastating that must be! My dd has recently had a flair/progression in her juvenile arthritis and while she is training some bars/beam right now, we know there is a possibility she will have to quit. There have been lots of tears- hers and mine!

I’m so sorry! It’s just heartbreaking!
 

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